Rose F. Kennedy IDDRC Newsletter
Lisa Jarvis. “Patients Advocate For Change.” Chemistry and Engineering News 91 (Issue 19): 15 – 20. Accessed May 13, 2013,
My son Jonah’s clock is ticking
One Mom’s Hopeful Fight Against Her Son’s Fatal Disease
Heartbreak Hill
GMA interview with Jill & Jonah
6 Rare Illnesses that Hollywood Has Put in The Spotlight and 1 It Hasn’t Yet!
Mom battling clock, odds to save son from deadly Sanfilippo Syndrome, a rare genetic disorder
CBS News, February 29, 2012, Transcript: CBS News, “Raising Awareness About Rare Diseases,” WCAX.com, last modified May 24, 2012,
Mom battling clock, odds to save son from deadly Sanfilippo Syndrome, a rare genetic disorder
Jonah’s Story: A Mother Fights for Her Son’s Life
Boy In Fight Of His Life Against Formidable Foe
