This symposium is designed for basic, translational and clinical researchers, patient advocacy groups, clinicians, and all others who are interested in learning more about the latest discoveries in the management and treatment of lysosomal diseases, as well as the clinical investigation of these advances. This meeting will help researchers and clinicians to better manage and understand diagnostic options for patients with lysosomal diseases; to identify areas requiring additional basic and clinical research, public policy and regulatory attention; and to identify and explore the latest findings in the natural history of lysosomal diseases.
Co-Presented by the Lysosomal Disease Network and the United States National Institutes of Health Office of Rare Diseases Research–National Center for Advancing Translational Science (NCATS), the National Institute of Neurological Disorders and Stroke (NINDS), and the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).
Contact: David Erickson, 612-624-7975
www.lysosomaldiseasenetwork.org
Held at:
February 11-13, 2014
Manchester Grand Hyatt San Diego
One Market Place
San Diego, CA 92101 USA
Voice: (619) 232-1234
Fax: (619) 233-6464
Cut-off date: Friday, January 10, 2014 – After the cut-off date, room rates may be available at prevailing rates.
A block of sleeping rooms is available at a discounted rate of $239 single, $239 double; plus taxes. Please make your reservation directly with the hotel prior to the cut-off date and refer to the course by name (Lysosomal Disease Network’s 10th Annual WORLDSymposium™ 2014 to receive the discounted rate. Reservations will be accepted on space and rate availability.
“The WORLD symposium is the best way for LSD patient advocates to meet up with their scientists, advisers, and connect with pharma and other patient advocates.” – Jill Wood
At World 2012, the rare disease report took the opportunity to interview Jill Wood and Dr. Brian Bigger.
”Rare Disease Patient Advocates and Researchers Collaborating More.”
“Mouse Model for Sanfilippo Brings Hope to Patient Advocate”
JJB’s 2012 Poster Presentation: “Raising Awareness of the Rare Disease Sanfilippo Syndrome Type C Using The Open Drug Discovery Teams (ODDT) Mobile App.”