The amazing Dr. Cao and the team over at South Slope Pediatrics have organized a team of racers for the 17th Annual Cinco De Mayo 5K Run, held in Prospect Park, to raise funds for, JJB. There will be an Adult 5k for runners and walkers, followed […]
February 28th was, International Rare Disease Day! JJB celebrated the day on Capital Hill with Jonny Lee Miller and friends. JJB’s Jill Wood and Jonny Lee Miller of the CBS’s hit show, ‘Elementary‘, spoke to a standing-room-only group consisting of patient advocates, legislators, and industry, about the importance of supporting federal programs that support […]
We are excited to announce this very special and inspiring Rare Disease Congressional Caucus Briefing |
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Rare Disease Legislative Advocates, National Organization for Rare Disorders & Jonah’s Just Begun Foundation to Cure Sanfilippo, in coordination with
Sanfilippo Clinical Trial of High Dose Oral Genistein AglyconeWe are at a pivotal moment for Sanfilippo and the continued evaluation of the soy derived molecule, genistein. While this molecule has been shown to be active in reducing neurodegeneration in preclinical mouse models, so far clinical studies in humans with low concentrations of the natural product have not been successful in showing any clinical […] De-Clutter For a Good Cause
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