Please follow and like us:

Conversations and healthy debate about issues facing our industry and the health care system are critical to addressing some of today’s challenges and opportunities. The Catalyst welcomes guest contributors, including patients, stakeholders, innovators and others, to share their perspectives and point of view. Views represented here may not be those of PhRMA, though they are no less key to a healthy dialogue on issues in health care today.

We’re pleased to host a guest blog from Jill Wood and Sean Ekins. Jill is the mother of Jonah, who has Sanfilippo Syndrome. She is the Founder of Jonah’s Just Begun, Co-Founder of Phoenix Nest, Inc. and a rare disease patient advocate. Her goal is to revolutionize efforts to bring treatments to rare disease patients. Sean is the CEO of Phoenix Nest, Inc.

Click HERE to read full article

Please follow and like us: