What would you do if you were told that your child has a fatal disease in which there is no cure? You’d fight for one! You can help, join us for “A Rare Occurrence Reception” June 17th, 6:30–9:30 at the McKittrick Hotel, NYC http://bit.ly/JJBFIX17
An interview with founders of: Jonah’s Just Begun-Foundation to Cure Sanfilippo Inc., JLK-Sanfilippo Research Foundation & Ben’s Dream-The Sanfilippo Research Foundation. Parents driving the science to develop a treatment for the ultra-rare- fatal pediatric disease Sanfilippo Syndrome.