We are excited to announce this very special and inspiring Rare Disease Congressional Caucus Briefing
Rare Disease Legislative Advocates, National Organization for Rare Disorders & Jonah’s Just Begun Foundation to Cure Sanfilippo, in coordination with
Rare Disease Congressional Caucus Co-Chairs
Representatives Leonard Lance (R-NJ) and
Joe Crowley (D-NY), will host a briefing Featuring
Special Guest Jonny Lee Miller, who stars as Sherlock Holmes in the hit TV show Elementary, will help us unlock the mystery of the “Science Behind Rare Disease Policy”
February 27th, 2014
Capital Visitors Center, Room HVC-201
Lunch Provided by event sponsors Genzyme & Shire.
There is very limited space available, you MUST register if you would like to attend.
To Register Click this link: http://bit.ly/1epoVk9
Moderator: Kay Holcombe, Senior Policy Analyst, Genzyme