Jill Wood is a, patient advocate, a citizen scientist, co-founder of JJB and Phoenix Nest, but most importantly she is a mother.
Along with her husband, Jeremy, she took the love she has for her son Jonah and hit the ground running. Her accomplishments thus far for Sanfilippo and other rare disease are too long to list. She has been documenting her, very human, journey in her blog.
http://jonahsjustbegun.blogspot.com
WARNING: This is Jill’s personal blog, JJB can not be held accountable for bad jokes, incorrect punctuation, or strong opinions.
Enjoy!