Jill was asked to speak at the Rare Disease Congressional Caucus briefing this past week when we were in Washington, D.C. for Rare Disease Week. Although Jill addressed the caucus 2 years ago, she was still a bit hesitant to accept. When she found out she was to speak on “The Role of Incentives in Developing Orphan Therapies”, she knew that she had to.
She happily spoke about her story, the needs of rare disease patient organizations, and the need for strong leadership in the FDA (thank you, Janet Woodcock!).
We used Facebook Live for the first time, but if you missed it, check out Jill speaking here: https://youtu.be/XG_GK2UBpNM
You can also check out the slides used during her presentation HERE.
We think she nailed it, how about you?