M@ri

/M@ri

About M@ri

This author has not yet filled in any details.
So far M@ri has created 14 blog entries.

The Quest To Find The Patients For A Rare Disease

The Quest To Find The Patients For Sanfilippo Syndrome Type D or MPS III D

For major diseases like diabetes, hypertension and cancer there are literally millions of patients, you probably know one or more person with one of these diseases, you may even have one of them. But when it comes to a rare disease […]

By | August 14th, 2015|Uncategorized|Comments Off on The Quest To Find The Patients For A Rare Disease

Luau at Lakside Prospect Park, you won’t want to miss this!

We are busy, busy, busy making Luau at Lakeside a fun event for the whole family.  If you haven’t heard about it head on over to our event page to see what it’s all about.

With splash pad, rollerskating, face painting, full luncheon and  a hula dancer, your kids and their friends […]

By | June 30th, 2015|Uncategorized|Comments Off on Luau at Lakside Prospect Park, you won’t want to miss this!

Contest Winners Announced!

By | May 28th, 2015|Uncategorized|Comments Off on Contest Winners Announced!

Just Three Days Until Jonny Lee Miller Runs 50 MILE!

 

Taking to the airwaves
 
If you missed it, Jonny went on Live with Kelly & Michael, AND CBS News with Kristine Johnson to talk about his run and Sanfilippo Syndrome.  There is just no stopping him.  Not only can this man […]

By | April 29th, 2015|Uncategorized|Comments Off on Just Three Days Until Jonny Lee Miller Runs 50 MILE!