01Dec

PayPal and ebay Are Getting Into The Holiday Spirit Of Charitable Giving

Share the post “PayPal and ebay Are Getting Into The Holiday Spirit Of Charitable Giving” FacebookTwitterGoogle+PinterestE-mail This holiday season, eBay and PayPal are helping nonprofits raise funds and awareness.  #GivingTuesday, December 2, 2014, is a global day dedicated to giving back. eBay and Paypal will be launching campaigns to help PayPal Giving Fund nonprofits make […]

28Nov

Holiday Giving

Share the post “Holiday Giving” FacebookTwitterGoogle+PinterestE-mail It has become increasingly popular to make donations in someone’s name instead of giving a gift. In a world of instant gratification and new gadgets topping old gadgets by the minute, a donation is the perfect gift. If you decide to donate in lieu of giving a gift, JJB […]

07Nov

Help Us Win A Chance to Put Sanfilippo In The Spotlight

Share the post “Help Us Win A Chance to Put Sanfilippo In The Spotlight” FacebookTwitterGoogle+PinterestE-mail PM&CO is a New York based full service marketing firm that has worked with big names such as HBO as well as non-profits like the Brooklyn Public Library.  They are holding their second annual contest, SHOOT. WIN. INSPIRE. video contest […]

07Nov

Joana Ricou…Preparing For a Live Painting Performance…for JJB

Share the post “Joana Ricou…Preparing For a Live Painting Performance…for JJB” FacebookTwitterGoogle+PinterestE-mail The very talented Joana Ricou has graciously agreed to tackle a challenge she has never done before, all in the name of raising money for JJB.  Like any big win, she has been preparing.  This is the blog she put out today: Preparing […]

07Jun

Advocates are campaigning, representatives and the FDA are taking note.

Share the post “Advocates are campaigning, representatives and the FDA are taking note.” FacebookTwitterGoogle+PinterestE-mail Look at what we started. I have to hand it to our friends at the EveryLife foundation and their work with their program the Rare Disease Legislative Advocates. Last February, Jonny Lee Miller and I joined a panel of esteemed stake […]

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2014 Rare Disease Congressional Caucus

More than 160 Advocates joined RDLA for it’s 3rd Lobby Day in Washington, DC to encourage Members of Congress to join the Rare Disease Caucus.