Jill Wood, Rare Disease Congressional Caucus Briefing

  Jill was asked to speak at the Rare Disease Congressional Caucus briefing this past week when we were in Washington, D.C. for Rare Disease Week. Although Jill addressed the caucus 2 years ago, she was still a bit hesitant to accept.  When she found out she was to speak on “The Role of Incentives […]


Anonymous Donor to Make a $20,000 Donation!

Tomorrow is Our Chance I KNOW! We are excited too.  If we can raise $10,000 tomorrow, #GivingTuesday, we will get a DOUBLE MATCHING donation of $20,000.  On top of that, the charity that raises the most will get a $25,000 donation from Crowdrise.   Please give what you can tomorrow, and urge your friends, family, co-workers, mailman, […]



Bunco, Bid, & Boogie for Jonah’s Just Begun Your are cordially invited to an evening filled with food, friends, music and auction. To be held Friday, May 20th from 6:30-10:30 PM PDT At Bella Via, Sherwood, OR Enjoy all that this event has to offer: Food catered by Rachel and the Hot Stove Bunco Dancing (who […]

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Jonny Lee Miller – Running For A Sanfilippo Cure

Elementary star Jonny Lee Miller is running 50 miles to raise money to cure a rare and fatal disease called Sanfilippo. Hear him talk about his training and why he is running. Catch Elementary Thursdays at 10/9c. Only CBS

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