Bunco, Bid, & Boogie for Jonah’s Just Begun Your are cordially invited to an evening filled with food, friends, music and auction. To be held Friday, May 20th from 6:30-10:30 PM PDT At Bella Via, Sherwood, OR Enjoy all that this event has to offer: Food catered by Rachel and the Hot Stove Bunco Dancing (who […]


Why neglected tropical disease and rare disease researchers need each other

Conversations and healthy debate about issues facing our industry and the health care system are critical to addressing some of today’s challenges and opportunities. The Catalyst welcomes guest contributors, including patients, stakeholders, innovators and others, to share their perspectives and point of view. Views represented here may not be those of PhRMA, though they are […]


Why Rare Disease Companies Need the Pediatric Rare Disease Priority Review Voucher

Why Rare Disease Companies Need the Pediatric Rare Disease Priority Review Voucher -Originally published by the Rare Disease Report If there was a genetic lottery and you were picking out diseases, you would hope that you did not get 1 of the 7000 rare diseases – especially rare pediatric diseases. And the reason is simple; […]


This Will Be Our Year, We Have Only Just Begun

This winter we will be launching our Giving Tuesday Campaign through Crowdrise Giving Tower.  Our theme is “This Will Be Our Year-We’ve Only Just Begun”.  Inspired by the song “This Will Be Our Year” covered by OK GO. (Click to listen) The idea behind Giving Tuesday is simple; on Black Friday we shop, on Cyber Monday we shop some more, on […]

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Jonny Lee Miller – Running For A Sanfilippo Cure

Elementary star Jonny Lee Miller is running 50 miles to raise money to cure a rare and fatal disease called Sanfilippo. Hear him talk about his training and why he is running. Catch Elementary Thursdays at 10/9c. Only CBS

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